It’s Thursday morning and we’re back from the wilds of
southern California. We had the cold
caps in the car at the airport, so on our way home from the airport we stopped at
PraxAir and dropped them off with JJ in the deep freeze. We’ve already picked them back up this
morning (along with the dry ice de jour) and had breakfast, both while Deb was
on a conference call and a webinar.
That’s OK, though, since I do most of the dry ice portioning and prep on
a usual basis anyway, and Deb had already told me what to order for her for
breakfast.
Deb weathered the trip to the House of Mouse well, all
things considered. She didn’t really
have any neuropathy to speak of, but that usually only becomes noticeable when
her hands are cold and that wasn’t a problem in Anaheim. Nausea was a slightly different story, but it
didn’t really hit her at any times when we were moving about or possibly being
jostled (either while on a ride or just trying to move through the madding crowd).
Mostly it affected her when she was hungry, so we have found that smaller, more
frequent meals tend to help with that.
Speaking of side effects, we don’t know whether what she’s
had over the last week are enough to make Dr. Ahmed decide to forego Taxol
again or not. We should find that out
when we see her officially at 11:40. Deb
did see her briefly while passing in the hallway a few minutes ago after Deb
was up in the infusion area to have her weekly blood-draw, but they didn’t talk
about anything more than the cold caps and making sure that they have the
literature on them so other patients can know about them. We will have to wait and see. I will update this post accordingly.
And yes, I did actually attend sessions (and present during
one of them) at the conference instead of spending all of our time at the
parks. Deb even got to meet one of my
favorite professors, Dr. Schneider, and also have dinner one evening with Dr.
Schneider and one of my classmates and his wife. Not to say that we didn’t get to ride all of
the rides we wanted to ride. I think Deb
will be happy at any park that has a roller coaster, and one that has four or
five is even better. But the fact that I
had sessions to attend allowed us to hop over to the park for a little while
and them back to the hotel so Deb could rest while I was busy at the
conference.
I did find her a little something, though. I stepped into one of the plethora of shops
and happened to notice, among the variety of different mouse ears they sell
(there are hundreds), one particular set I hadn’t seen anyone else
wearing. But they are just the right
shade of Breast Cancer Pink, so I snapped them up right then. From then on Deb was only allowed to take
them off while on a roller coaster or to go to bed. I’m thinking she will have to wear them over
the cold caps today if she gets taxol.
Isn’t she adorable?
One last note. We saw
Deb’s plastic surgeon last week before we left.
He seems pleased with Deb’s progress recovering from the mastectomy and
we have set a tentative date for her restoration surgery. More to follow as we go along.
:::: LATE BREAKING UPDATE ::::
We have seen Dr. Ahmed and she feels that Deb's side effects have improved enough that she will receive Taxol today in addition to the Herceptin, which is what she is getting right now as I type this. The first cold cap is on her head and she's chilling out (ha ha) while checking her email on her phone. Chemoday 10 of 12 has begun (remember that we skipped 8 and 9, and that I'm only counting the Taxol weeks and not the Herceptin weeks, which will continue every three weeks after the first 12 for the remainder of a year (so around March 2017).
:::: LATE BREAKING UPDATE ::::
We have seen Dr. Ahmed and she feels that Deb's side effects have improved enough that she will receive Taxol today in addition to the Herceptin, which is what she is getting right now as I type this. The first cold cap is on her head and she's chilling out (ha ha) while checking her email on her phone. Chemoday 10 of 12 has begun (remember that we skipped 8 and 9, and that I'm only counting the Taxol weeks and not the Herceptin weeks, which will continue every three weeks after the first 12 for the remainder of a year (so around March 2017).
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